Ease of Care Giving for Children: Parent Perceptions of the Physical Demands of Care Giving for Children with Cerebral Palsy in Indian Context

Abstract

Care giving for children with cerebral palsy engages the complete parenting measure of how difficult to safely manage and help their children with cerebral palsy to complete the activities of daily living skills. The aim of the current study was to examine the consistency and test-retest reliability and construct validity of the group methods on the ease of parenting for children with cerebral palsy and 10 parents of children without motor delay in the age group of 18 to 60 months were included and parents were instructed complete the ease of care giving and have to be present with the therapist assessed gross motor function. The Rasch model of item response was used to develop interval level scale. Results declare the high internal consistency and test retest reliability. It has been identified that ease of care giving varies with different ages for parents with cerebral palsy children. Parents of children with gross motor defects reported more trouble in care giving than parents of children with intact gross motor skill.  Rasch analysis was used to hierarchical ordering of items with logical sequence. Findings of the current study suggested that ease of care giving for children with cerebral palsy as a reliable and valid measure of parent’s perception of their trouble to safely help their children perform their ADL skills in Indian context. There is a need for health care professionals to evaluate the family needs in parenting their children with cerebral palsy.